Tag Archives: health stuff

Bonus Post: Learning a bunch of medical terms

Hello dear readers! In the brief note at the top of my previous post, I mentioned that I’d be giving a bit of an update on my health situation. This post is that update. There’s going to be a lot of medical terms and links in this one, so buckle up!

I saw an electrophysiologist on the thirtieth of last month. To be honest, I had never heard of an electrophysiologist until my regular cardiologist told me he wanted to refer me to one back in October. I was surprised to learn there are specializations even within the specialization of cardiology.

I find it convenient that not only are my two cardiologists part of the same health group, but they actually work out of the same office. So finding Dr. Gallagher (my electrophysiologist) that day was pretty easy. Learning to remember all the medical terms he threw out during our visit took a bit of time. In fact, I had to google a couple of abbreviations he threw out to find/remember the full terms.

That Thursday was the first time I had heard anyone say the word supraventricular tachycardia (SVT), which is the definite diagnosis I currently have. Provisionally, Dr. Gallagher has given a further diagnosis of atrioventrucular nodal reentrant tachycardia (AVNRT), which is a specific category of SVT.1 According to sources I found online, it’s also the most common category of SVT. With that diagnosis, Dr. Gallagher moved on to discuss the possible courses of treatment.

The treatment that he recommends — and the one I eventually decided on — was to schedule an electrophysiology study (EPS) to find the “extra circuit” that he suspects is causing my SVT/AVNRT. If he can find it and he deems it sufficiently low-risk to do so, he will then effectively “break” that circuit with an ablation procedure. This could eventually cure my SVT/AVNRT.2 He says the probability that everything will work out that way are good (about 90%). The other 10% involves choosing an alternative treatment, either using medication or putting in a pacemaker.

The good news is that the EPS and ablation procedure can be done as an outpatient procedure. Sure, it’ll be an all-day stay at the hospital (I have to lay flat on my back for four hours and be monitored as they ensure the hole in the artery in my thigh closes up properly), but I should be able to come home and sleep in my own bed/recliner. The recovery is also pretty simple with restricted physical activity (in particular, lifting no more than ten pounds) for a week or less.

The only downside is there is a tiny chance (1% or less) of something going really badly. We’re talking heart attack and stroke territory. But like I said, that’s extremely unlikely. However, given that I have a husband who struggles with anxiety and was bound to get triggered as that part of his brain played out all those worst case scenarios, I did ask Dr. Gallagher to discuss the other most obvious option, which is treatment with medicine. Naturally, this is less desirable, as it’s a lifelong treatment rather than a potential cure. But Not causing my husband to experience any anxiety attacks seemed like something I might take another pill for the rest of my life for. I mean, I’m already up to six oral medications a day, a weekly injectible, and thrice daily insulin shots.

That approach ended up having it’s own problems. As Dr. Gallagher reviewed my chart, he realized the only medication he could potentially treat my SVT with was sotalol. Going on sotalol involves a two-night stay in the hospital for monitoring. A hospital stay was not going to help my husband’s anxiety either, especially since our local hospital doesn’t like to let family stay overnight.3 So I wasn’t sure what to do.

Fortunately, I didn’t have to make a decision that day and Dr. Gallagher agreed to just raise my dosage of of metoprolol while I came home and discussed the news and options with hubby.

In the end, I wasn’t able to help hubby avoid the anxiety attacks, but we got through them. And over the course of a few days, we decided to go with the EPS and potential ablation procedure. Ultimately we decided the idea of me coming home from the hospital the same day and the potential to just to cure the SVT outright was the better option, despite the risks. Especially when we considered just how low the risks are. Also, if I’m being honest, the thought of going on a medication that required me to stay in the hospital for monitoring made me uncomfortable. I haven’t researched it, but I find myself wondering just how harsh this medication is.

So after about a week of talking and letting things settle, I called and asked a few more questions. As part of that conversation, I informed the staff that I wanted to schedule the EPS/ablation procedure. They told me they’d send a message to Dr. Gallagher and get back to me with a potential date. And that’s what I’m waiting for now.

They did tell me that they’re booked out a ways and I’m probably looking at a date “sometime in the Spring.” This is fine with me, as I’d really like to get our vehicle back on the road. I’ve been taking Ubers everywhere (thank goodness I can work from home) and would prefer to change that so i don’t have to come home from the hospital in an Uber.

Fortunately, all my test results show that my heart is quite strong and healthy, so the delay is not a problem in that regard.4 Now the only reason to get it done as soon as possible is to get it over with so hubby can quit experiencing anxiety over it. And to be honest, I’m a bit nervous myself. I’ll be happy to put this in my rear-view mirror.

Post HIstory: This post was drafted. proofread, revised, and finalized on 8 February 2025.

Footnotes

  1. Dr. Gallagher’s assistant/student mentioned one other form of SVT, but I don’t remember what that was. Either way, the treatment moving forward seems to be the same. ↩︎
  2. Unfortunately, this will do nothing for my cardiomyopathy. That damage is permanent. But I can continue to manage that through my current regiment of medications. ↩︎
  3. Dr. Gallagher and I had already discussed my husband’s anxiety as we talked about the EPS and ablation procedure, so I asked him if there was anyway he could arrange for permission for him to spend the night with me. Unfortunately, he said he couldn’t guarantee that. This just further annoys me with our local hospital. ↩︎
  4. Granted, if my health were more critical, I’d like to think they’d find a way to fast-track my procedure. But the reality is that AVNRT is often not even something that needs to be treated. But given just how fast my heart beats when I have an episode, it’s time to do something about it in my case. ↩︎

A personal update

Hello, dear readers! I apologize for my lengthy absence (which isn’t quite over). I did not expect to disappear for two months. However, life has been hectic and stressful and I just decided I needed some time away.

For those who have not followed me on social media, I have been chasing answers for what’s going on with my heart since September. I’ve been through a nuclear stress test, an echocardiogram, and multiple EKGs. On the 30th of this month, I’m going to see an electrophysiologist, which is a cardiologist that specializes in the heart’s “wiring.” At this point, we’re hoping he can analyze the current information and shed some light on why my heart suddenly decides to speed up and/or break out into abnormal rhythms from time to time. The good news is that I’m not in any immediate danger. But I’d really like to know what’s going on and figure out what we need to do to ensure I continue to be in no immediate danger.

On top of that, I’m dealing with a bit of sadness. Yesterday was my mother’s birthday and today is the anniversary of her death. Yeah, she died a day (actually mere hours) after her birthday.1 As such, she’s been on my mind and I’m experiencing a lot of sadness over that right now.

As I implied above, I’m not quite ready to get back to regular posting, but hope to resume in February. At that time, i plan to resume my Monday and Friday schedule. The first Friday in February, I plan to resume my blog series regarding Spinning Wyrd by Ryan Smith. We’ll see what the first few Monday posts regard. I’d love to continue the polytheology series, but that depends on whether I can come up with something I want to talk about between now and then.

In between now and February, I might do a bonus post or two. We’ll just have to see.

Post history: I wrote the first draft of this post on 22 January 2025. I proofread, revised, and finalized it on 23 January 2025.

Footnotes

  1. One of the sad things about her death is that she had decided she wanted to stop palliative care and return to rehabilitation after many family members came to see her in the nursing home on her birthday. Alas, her heart quickly decided that wasn’t meant to be. ↩︎

A Personal Update, Health Edition

I haven’t blogged much in a while.  Part of the reason for that is that I haven’t been sure what to blog about.  The other part of that reason is that I haven’t been doing well health-wise since at least August.  This blog post is going to be about my health, the (ongoing) road to recovery, and my thoughts along the way.

A collection of five pills.
All but my metformin.

Back in August (maybe July), I started noticing I was getting winded pretty easily.  Climbing stairs took extra effort and occasionally a break about halfway up.  I didn’t think much of it at the time.  I just figured I had been to sedentary, since I hadn’t gone for my walks this past summer like I do most summers.  Things got progressively worse until they got really bad in September.  By the last two weeks of September, it took multiple pauses to make it up a single flight of stairs.  September is when I also started noticing the swelling in my feet and legs.  A lot of swelling.  (We’ll get to the details in a bit.)

At first, I was my stubborn self and insisted things would straighten themselves out, right up until September 17.  At that point, I decided it was time to run to one of the urgent care facilities.  At this point, I was thinking maybe an infection of some sort (I know some infections can cause edema).  The doctor there checked me out and had me get a chest x-ray.  Then she gave me the bad news:  I was experiencing congestive heart failure.  So much for getting some antibiotics and heading home.

Instead, the doctor ran an EKG on me, looked at it and gave me a choice:  I could solemnly swear that I would drive myself to the hospital that day or she could call an ambulance.  I asked her if I could drive myself home first to pick up my cell phone first, which she said was fine.  So I went home, grabbed my cell phone, threw together my laptop case, and called my parents to come get the cat, since I knew I’d be in the hospital for at least a couple days.  I also decided to call a friend and have her drive me to the hospital.

I got to the Emergency Department at around 4:30 and they had me in a bed by 5:00pm. They also began the Lasix almost immediately to start getting the edema off.  They kept me in emergency until 3:30am and then moved me into a room in 4-34.  (That also happens to be the floor where they tend to keep transplant patients, which freaked out at least one friend who came to visit me at first.)  My first thirty six hours in the hospital consisted of little more than eating, sleeping, and peeing as much as humanly possible, thanks to the Lasix they were pumping into me.  (The switched me over to an oral diuretic my second morning there.)

Glucometer with reading.
Great reading!

The first morning, they also took me for an echocardiogram, where they discovered all the gory details about my heart (the left side is enlarged and it’s pumping at around half the strength it should be).  They also started putting me on medications to lower my blood pressure, slow my heart rate, and lower my cholesterol (which actually isn’t that bad anyway, thankfully).  They also put me on insulin for my diabetes which was not as under control as I had imagined.

In all, I ended up being in the hospital for eight days.  That’s mainly because it took my body until Sunday to be able to do much of anything without being on oxygen and they didn’t want to send me home on it.  Then they kept me until Monday so they could do an angiogram (no arterial blockages or damage, thankfully).  The cath lab didn’t get me in for the procedure until almost four, so they kept me one more night.  By the time I got out of there on the 24th, I was ready to get home.

The good news is that things are greatly improved.  I’m feeling a lot better — which isn’t surprising considering that the doctor estimated I went in carrying around about fifty pounds of extra water.  Right now, my doctors are in the process of tweaking my medications to get the best results and making sure my body  can tolerated the medications.

On the bright side, this finally forced me to find a doctor (and a cardiologist now) so I can get back to monitoring my health more closely.  It’s unfortunate that it took such a serious health crisis to force me to do so, but there you have it.  It also forced me to get things straightened out (with countless thanks to my father for helping with this) at home so I can start cooking again.  The low sodium lifestyle just isn’t compatible with eating nothing but delivery and takeout.

Hopefully, in time, I will even find the time and energy (the only problem I’m having right now is I still tend to tire quickly) to return to blogging. Then I just have to work out what to blog about.  😉